05. What does Stage 2 (the online survey) involve?

This stage of the study is now closed.

Stage 2 of the study was an online survey asking you a series of questions about life with EB; from diagnosis to treatments, to how it impacts your day-to-day life, and information and support you have found useful, taking around 20 minutes to complete.

Anyone who took part in the online survey was entered into a prize draw to have a chance at winning some great prizes.