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  1. Information & support
  2. About EB

About EB

Find out more about the painful genetic skin blistering condition, Epidermolysis Bullosa (EB). The four main types along with symptoms and support options are listed below. 

What is EB?

What is EB?

Epidermolysis Bullosa (EB) is a painful genetic skin blistering condition with no cure. Find out about different types of EB, causes, symptoms and treatments. Read more

Published: 1st July, 2020

Updated: 6th April, 2022

Author: Wendy Garstin

Testing & diagnosis

Testing & diagnosis

Laboratory diagnosis is essential to determine the type of EB and the precise cause at the genetic (DNA) and protein levels, but other diagnostic tools are also available. Read more

Published: 2nd July, 2020

Updated: 22nd March, 2022

Author:

EB Simplex (EBS)

EB Simplex (EBS)

The most common and mild-moderate form of EB whereby the defective gene and fragility occurs within the upper layer of the skin – the epidermis. Read more

Published: 3rd July, 2020

Updated: 22nd March, 2022

Author:

Dystrophic EB (DEB)

Dystrophic EB (DEB)

Can be mild or severe (dominant or recessive). The defective gene and fragility occurs below the basement membrane within the superficial dermis. Read more

Published: 10th July, 2020

Updated: 22nd March, 2022

Author:

Junctional EB (JEB)

Junctional EB (JEB)

A moderate-severe form of EB. The defective gene and fragility occurs in the basement membrane - the structure that keeps the epidermis and dermis together. Read more

Published: 15th July, 2020

Updated: 22nd March, 2022

Author:

Kindler EB (KEB)

Kindler EB (KEB)

Named after the protein Kindlin1, which is the protein affected by the defective gene. This type of EB is very rare but fragility can occur at multiple levels of the skin. Read more

Published: 20th July, 2020

Updated: 22nd March, 2022

Author:

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  • Current projects

    Current projects

    Find information about the EB research projects we currently fund.

  • Swim Serpentine 2022

    Swim Serpentine 2022

    Take the opportunity to participate in an open water swimming festival at the famous Serpentine Lake in London's Hyde Park. Challenge yourself to a one mile, two mile or six mile swim.

  • Bath Half Marathon 2023

    Bath Half Marathon 2023

    Join #TeamDEBRA and take on this challenge through the beautiful city of Bath. We will support you every step of the way.

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    Donate your unwanted furniture, homewares and electrical items using our free furniture collection service. With safety measures in place, donating your items couldn’t be easier.

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    Find your nearest DEBRA charity shop and help fight EB. Our stores sell affordable and quality pre-loved clothing, furniture, electrical items, books, homeware and more.

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    Find out what health and safety standards and labels we require and which items we cannot sell.

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  • What is EB?

    What is EB?

    Epidermolysis Bullosa (EB) is a painful genetic skin blistering condition with no cure. Find out about different types of EB, causes, symptoms and treatments.

  • Donate items

    Donate items

    Donate your quality pre-loved items, including clothes, furniture and homeware to keep them from landfill and help us to raise vital funds through our stores. Find out more about how to donate items today.

  • Work with us

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    DEBRA can only continue its vital work with the support and encouragement of the local community and with the hard work of its employees and volunteers.

  • Who we are

    Who we are

    DEBRA is the national charity that funds research and healthcare to support individuals and families affected by Epidermolysis Bullosa (EB)

  • Our history

    Our history

    DEBRA was founded in 1978 by Phyllis Hilton whose daughter Debra had Dystrophic EB – the charity was the world’s first EB patient support group.

  • Dystrophic EB (DEB)

    Dystrophic EB (DEB)

    Can be mild or severe (dominant or recessive). The defective gene and fragility occurs below the basement membrane within the superficial dermis.

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