Graeme Souness

"I am delighted to be Vice President of the charity DEBRA, the charity that supports people with Epidermolysis Bullosa (EB). I am taking on the role because I am in a position to bring this charity to the attention of a number of people who will be able to make a real difference to the EB community.

I personally was appalled at just how cruel and painful the condition is. More people need to know about this condition because it is the worst thing that I have ever seen. If I can generate the sort of passion that I feel for this cause from a few people that I know then we could make a huge impact on the research into EB – research that not only will help those living with this now but could even lead to a cure"

   

Frank Warren

"I’ve hosted the annual DEBRA Fight Night for nearly 20 years to support the charity’s fundraising. I got involved with DEBRA after meeting a wonderful young man called Jonny Kennedy, who had EB. I wanted to commemorate his life and raise funds to help sufferers of this terrible skin condition."

 

 

 

 

Stuart Procter

“I feel very privileged and honoured to be given the opportunity of working with DEBRA, a charity very close to my heart. As Vice President, I am looking forward to making a real difference to the day-to-day lives of those families who live with the painful and distressing condition of EB, every day.”