Isla Grist, her mum and her sister smile with Zendaya.Yesterday evening (9th July), some our DEBRA members had the opportunity to attend a private screening of the 2022 action-adventure film, Uncharted, starring Tom Holland.

The screening was hosted by The Brothers Trust, a charity set up by Nikki and Dom Holland, which has generously supported DEBRA and the EB community over the years; including hosting events, providing funding for our Community Support Team and DEBRA holiday homes, and using their platforms to help raise awareness of EB.

After the screening took place, guests had the opportunity to meet and take photos with Tom Holland and Zendaya.

Fazeel and his brother smile at a camera with Zendaya in the middle. A young girl called Jasmine stands with family and Tom Holland, and Helen Weaver from DEBRA

One of our DEBRA members who attended said:

Thank you to The Brother's Trust for helping raising awareness of EB. A lovely event, great film and made mine and my daughter’s day!

Other charities in attendance included Great Ormond Street Hospital and Cure EB, another charity dedicated to raising awareness and funds to help people living with EB.

A huge thank you to The Brother's Trust for organising this fantastic event and for all they do to help us #StopThePain for people living with this cruel condition.