We extend our full support to all people from Ukraine living with EB who seek refuge in the UK and across Europe.

We are committed to providing information, support and guidance to the EB community in the UK to ensure that people affected by EB and their families have the services they need to manage this complex condition.

We are working with DEBRA International to deliver specialist medical supplies and resources for people with EB from Ukraine. 

If you would like to make a donation, the Disasters Emergency Committee (DEC) has launched a Ukraine Humanitarian Appeal to raise funds for food, water, medicine, protection and trauma care for people fleeing the war.

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