Sajid Javid speaks in a conference

DEBRA has sent a letter to the Rt Hon Sajid Javid MP, Secretary of State for Health and Social Care, requesting £10m of financial support to accelerate our drug repurposing program and research into future treatments for the genetic skin blister condition, epidermolysis bullosa (EB). A copy of the letter can be viewed here.

You can help us to raise awareness of EB and the need for additional funding to support drug repurposing by sharing this letter with your local MP. To support you with this we have created an example letter that you can use to write to or email your MP. You can find their contact details by visiting

With your help we can raise awareness of EB and the need for government support to ensure that in the future no one has to suffer with EB.

Thank you for your support.