The cover of DEBRAs members newsletter, EB Matters, showing a man and his son smiling.

We are pleased to share the release of our new members newsletter, EB Matters!

EB Matters is DEBRA's newsletter for members, which will be published twice a year. It will feature recent news, research updates, information about our support services and ways you can get involved, member benefits, suggestions for managing life with EB, stories from our members, and more.

This issue covers…

  • Why now is an exciting time for EB research.
  • Healthcare FAQs from our members, with answers from an EB specialist nurse.
  • Where you can find support and what benefits we can offer you.
  • Ways you can get involved with DEBRA.

And lots more.


Read EB Matters