As part of our A Life Free of Pain appeal, we organised some TV interviews with CEO Tony Byrne, Director of Member Services, Claire Mather & DEBRA Ambassador, Lucy Beall Lott to help raise much needed awareness of EB.

Lucy shared her experience growing up with recessive dystrophic EB; her diagnosis, growing up in Texas, modelling and her love of academia, before Tony and Claire shared our plans to raise £5 million in 2023 to fund drug repurposing to find treatments to #StopThePain for people living with EB.

You can watch the interviews below!


DEBRA CEO Tony Byrne and model Lucy Beall interviewed on GB News



Model Lucy Beall and Claire Mather, DEBRA Director of Member Services interviewed on London Live