Adults (18+) living with any type of EB or adult family members of children living with EB, are invited to discuss their experiences of nurses treating a wound that has lasted more than four weeks in online workshops via Zoom. Personal experiences will help the researchers to develop a better project to understand the values and behaviours that are important when nurses are providing care. An online workshop will provide feedback and invite participants to shape the questions for a research project planned by King’s College London and John Hopkin’s University (USA).

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