The Centre for Appearance Research at the University of the West of England is exploring family planning and decision making for people with a visible difference which can be inherited.

Research Fellow, Dr Kerry Montgomery would like to explore what influences decisions about having children, the options available, and what support would be helpful when making decisions. The findings will inform the development of support resources for families.

To take part, you need to:

  • Be aged 18 or over
  • Be personally affected by EB
  • Have considered having children or have children

Kerry is looking for two DEBRA members to review some materials (approximately an hour) and take part in a 1 hour online meeting.

These members would be paid £25 per hour for their time.

If you are interested in participating in this Patient Public Involvement (PPI) opportunity, please answer a few short questions in the link below:

Register your interest in being a Research Advisor for the project: Exploring family planning decisions for people with an inheritable visible difference.