9 February 1988 - 23 December 2015 (Aged 27)

To Charlie from Grandma Val

We’d like to thank you Charlie
For all the things you’ve shared
Your living and your laughter
With all of us who cared
With you we learnt to play again
We shared your games and toys
You shared with us the magic
Of the world of little boys
With Action Man and Turtles
Batman and Robin too
But none of these fine heroes
Were half as brave as you

And then as you got older
Your interest in sport grew
In every game you played your best
We were so proud of you
With Wheelchair Football, Boccia
Hockey, Snooker, Pool
In all these games you always gave
Your best, your heart and soul
We’d like to thank you Charlie
For the memories you’ve made
And these, just like your spirit
Will never ever fade.

To Charlie from Alice

We’ll remember you in orange – strong and bright and bold
Like our happy memories, orange can’t grow old.
The only time orange wasn’t your very favourite hue
Was then you were calling ‘Come on your reds’ while supporting your team Manu-U!

We’ll remember you as a keen sportsman – you played a game to win
Mean at board games – and pool we couldn’t beat you in!
In wheelchair football and boccia you impressed many with your ability,
You played the games with skill and fierce competitively.

We’ll remember you in Florida winning crazy golf on holiday
And in your element in the arcades with prizes to win and machines to play,
On the grab machines you bagged toys galore –
I’ve next seen anyone win more!

We’ll remember you as a whizz with equations, fractions and calculations
Always happy to help out his stupider relations!
We’ll remember you as our hero in so many ways,
Dressed as Batman and Robin in your younger days!

We’ll remember your smile and your laugh…and how could we ever forget your farts!
And although there are more important parts
We hope wherever you now may be
You’re somewhere you can let the wind pass free!

We’ll remember you in all these ways…and many more,
Always and forever an amazing inspiration to us all,
Of how to turn the hardest times and darkest fight
Into a joke and a laugh…and into light.

May I Go Now?

Do you think the time is right?
May I say goodbye to pain filled day
and endless lonely nights?
I lived my life and done my best,
an example I’ve tried to be.
So can I take that step beyond the light
and set my spirit free?

I didn’t want to go at first,
I fought with all my might.
But something seems to draw me now
to that warm and loving light.
I want to go, I really do,
it’s difficult to stay.
But I will try as best I can
to live just one more day.

To give you time to care for me
and share your live and fears.
I know you’re sad and are afraid
because I see your tears.
I’ll not be far, I promise that,
and I hope you’ll always know.
That my spirit will be close to you
Where ever you may go.

Thank you so for loving me
and know that I love you too.
That’s why it’s hard to say goodbye
and end this life with you.
So hold me now just one more time
and let me hear you say,
Because you care so much for me,
you’ll let me go today.

By Susan A Jackson

Butterfly picture courtesy of Martin Haeuserer.