Group shot from DEBRA America gathering.

We are pleased to be able to share with you EB Connect, a private online social collaboration platform for the global EB community.

EB Connect features many different groups for different types of EB, different age groups etc. that will enable you to connect with other members of the global EB community. One of these pages is a dedicated DEBRA UK page, which we hope will prove to be a useful resource that will enable you to connect with other community members from across the UK to share experiences and ideas, to make friends, or to just have a chat.

The DEBRA UK page is brand new and thus to maximise the opportunity to make these vital connections it would be great to have as many members of the DEBRA membership and wider EB community signed up as possible, so please do tell other people you know with, or affected by EB, about EB Connect.

EB Connect is a completely free online resource for the EB community. To sign up please visit this page and then choose which groups you wish to join, we hope this will include the DEBRA UK group.


Sign up today!


We hope that you will find this a useful resource to help you connect with the wider EB community. Please do let us know what you think of EB Connect by emailing [email protected].