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  1. Healthcare professionals

Healthcare Professionals

EB patient management

EB patient management

People living with EB have fragile skin. It may blister and tear very easily, including the mouth and throat. Ask the patient or my family for advice. They are the experts. Read more

Published: 27th October, 2020

Updated: 17th August, 2022

Author: Stephanie Webb

Specialist healthcare

Specialist healthcare

Working in partnership with the NHS to deliver an enhanced EB healthcare service for people living with EB. The EB centres of excellence have multidisciplinary teams providing expert specialist EB healthcare. Read more

Published: 28th October, 2020

Updated: 29th August, 2023

Author: Wendy Garstin

Events for professionals

Events for professionals

Learn directly from expert clinicians and healthcare professionals. DEBRA sponsors a wide range of events for professionals to advance their knowledge and skills in EB. Read more

Published: 29th October, 2020

Updated: 26th January, 2022

Author: Stephanie Webb

Clinical Practice Guidelines

Clinical Practice Guidelines

Clinical practice guidelines (CPGs) are a set of recommendations for clinical care, based on evidence gained from medical science and expert opinion. CPGs help professionals understand how to treat someone with EB. Read more

Published: 30th October, 2020

Updated: 22nd September, 2023

Author: Stephanie Webb

Resources for healthcare professionals

Resources for healthcare professionals

This page includes relevant resources for clinicians and healthcare professionals treating and managing EB patients. Please visit the knowledge hub for resources relevant to non-medical professionals. Read more

Published: 31st October, 2020

Updated: 18th July, 2023

Author: Kat Heppinstall

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Latest

  • Dine with DEBRA lunch aboard the Fingal, Edinburgh raises £20,000

    Dine with DEBRA lunch aboard the Fingal, Edinburgh raises £20,000

    We’re thrilled to announce our dine with DEBRA lunch aboard the floating Fingal hotel in Edinburgh has raised £20,000 towards our A Life Free of Pain appeal.

  • Your feedback is vital

    Your feedback is vital

    We welcome your feedback. Please let us know if you have any suggestions for improvements to our EB information. We’d also love to hear from you if you think we are doing something well.

  • DEBRA Fight Night 2023, hosted by Frank Warren, raises over £180,000

    DEBRA Fight Night 2023, hosted by Frank Warren, raises over £180,000

    We're delighted to announce that our annual Fight Night event has raised over £180,000 to help #FightEB, making it DEBRA's most successful Fight Night in 15 years!

  • DEBRA SLT members meet with Jennie Minto and Bob Dorris at Scottish Parliament

    DEBRA SLT members meet with Jennie Minto and Bob Dorris at Scottish Parliament

    We took a further step on our government campaigning journey today (Wednesday 22nd November) with a meeting held at the Scottish parliament with Jennie Minto MSP for Argyll and Bute and Minister for Public Health and Women's Health in Scotland, and our meeting sponsor, Bob Dorris, MSP for Glasgow Maryhill and Springburn.

Most read

  • Find a store

    Find a store

    Find your nearest DEBRA charity shop and help fight EB. Our stores sell affordable and quality pre-loved clothing, furniture, electrical items, books, homeware and more.

  • Furniture collection

    Furniture collection

    Donate your unwanted furniture, homewares and electrical items using our free furniture collection service. With safety measures in place, donating your items couldn’t be easier.

  • Items we do not sell

    Find out what health and safety standards and labels we require and which items we cannot sell.

  • Graeme Souness swimming the English Channel  to raise £1.1m to stop the pain of EB

    Graeme Souness swimming the English Channel to raise £1.1m to stop the pain of EB

    Graeme Souness, ex-international footballer, manager, and pundit, is swimming the English Channel this June to raise £1.1m to stop the pain of epidermolysis bullosa (EB).

  • What is EB?

    What is EB?

    Epidermolysis bullosa (EB) is a painful genetic skin blistering condition with no cure. Find out about different types of EB, causes, symptoms and treatments.

  • Contact Us

  • Donate items

    Donate items

    Donate your quality pre-loved items, including clothes, furniture and homeware to keep them from landfill and help us to raise vital funds through our stores. Find out more about how to donate items today.

  • Work with us

    Work with us

    DEBRA can only continue its vital work with the support and encouragement of the local community and with the hard work of its employees and volunteers.

  • Imagine your skin being in constant pain? No one should have to live like this

    Imagine your skin being in constant pain? No one should have to live like this

    Imagine a dozen surgeries in less than a decade? No one should have to live like this. Please help us find treatments to #StopThePain.

  • Become a member

    Become a member

    If you or a family member live with EB, are a carer or someone who works with people affected by EB, then you can become a DEBRA member. Find out how.

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