03. Guide researchers to create a useful project on ‘person-centred wound care'

Adults (18+) living with any type of EB or adult family members of children living with EB, are invited to discuss their experiences of nurses treating a wound that has lasted more than four weeks in online workshops via Zoom. Personal experiences will help the researchers to develop a better project to understand the values and behaviours that are important when nurses are providing care. An online workshop will provide feedback and invite participants to shape the questions for a research project planned by King’s College London and John Hopkin’s University (USA).

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Parent Pitstop: Meet our fundraising team

Parent Pitstops are an opportunity to connect with other members online via Zoom. This event will also be a great chance to meet members of our fundraising team and get a closer look at how we raise funds to support the EB community.
DEBRA UK holds panel discussion at the LifeArc Translational Science Summit

DEBRA UK member and ambassador, Lucy Beall Lott, Vice President, Graeme Souness, CEO, Tony Byrne, and Director of Research, Dr Sagair Hussain, held a panel discussion at the LifeArc Translational Science Summit at the Business Design Centre in London.
01. Parent and Sibling Experiences of EB - interviews
Things to do before the event

Find out about the important things there are to do before you come to Members' Weekend.

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Find a store

Find your nearest DEBRA charity shop and help fight EB. Our stores sell affordable and quality pre-loved clothing, furniture, electrical items, books, homeware and more.
Furniture collection

Donate your unwanted furniture, homewares and electrical items using our free furniture collection service. With safety measures in place, donating your items couldn’t be easier.
Items we do not sell

Find out what health and safety standards and labels we require and which items we cannot sell.
What is EB?

Epidermolysis bullosa (EB) is a painful genetic skin blistering condition with no cure. Find out about different types of EB, causes, symptoms and treatments.
Graeme Souness swimming the English Channel to raise £1.1m to stop the pain of EB

Graeme Souness, ex-international footballer, manager, and pundit, is swimming the English Channel this June to raise £1.1m to stop the pain of epidermolysis bullosa (EB).
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Donate items

Donate your quality pre-loved items, including clothes, furniture and homeware to keep them from landfill and help us to raise vital funds through our stores. Find out more about how to donate items today.
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DEBRA can only continue its vital work with the support and encouragement of the local community and with the hard work of its employees and volunteers.
Become a member

If you or a family member live with EB, are a carer or someone who works with people affected by EB, then you can become a DEBRA member. Find out how.
Imagine your skin being in constant pain? No one should have to live like this

Imagine a dozen surgeries in less than a decade? No one should have to live like this. Please help us find treatments to #StopThePain.

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