We share stories for many reasons – to raise awareness of EB and increase understanding of the condition, to share experiences with the EB community for help and support and to inspire others such as researchers and donors to support EB. We share stories in lots of ways - through our social media, in news articles, radio or TV interviews, blogs, quotes in publications, videos on our website or social media, talking at events and meeting some of our major supporters.
Telling your story is a personal decision. We will respect and support whatever decisions you make. Please complete our form if you are interested in sharing your experience and story.
Please provide details about the content that you are authorising, like where and when it was created, and the type of activities, for example, shop photoshoot, volunteering, fundraising event, family images, etc.
If yes, please complete the section below
Thank you again for sharing your content with DEBRA. For more information on how DEBRA uses your information please visit www.debra.org.uk/privacy.