On Wednesday 8th May, DEBRA Royal Patron, HRH The Duchess of Edinburgh GCVO met more DEBRA UK members during an afternoon reception at The Beaumont Hotel in London. Read more
April was a busy month in Scotland for the fundraising team as we held two events for our BE the difference for EB appeal! Read more
We are back in Saltcoats and delighted to say hello in Trowbridge! Read more
We're lucky enough to have a group of wonderful supporters who help us raise awareness and funds for people living with EB. Here are just a few of our most recent fundraising heroes! Read more
Last Friday (26th April) our Royal Patron, HRH The Duchess of Edinburgh GCVO met with DEBRA UK members and supporters at an afternoon reception held at Greyfriars Hall part of the Virgin Hotel in Edinburgh. Read more
Craig Hamilton is gearing up for an extraordinary challenge on May 18th, as he sets out to walk the entire 84-mile length of Hadrian's Wall, barefoot. Read more
DEBRA UK member and ambassador, Lucy Beall Lott, Vice President, Graeme Souness, CEO, Tony Byrne, and Director of Research, Dr Sagair Hussain, held a panel discussion at the LifeArc Translational Science Summit at the Business Design Centre in London. Read more
DEBRA UK is pleased to announce a new long-term research partnership with the world-renowned Cancer Research UK (CRUK) Scotland Institute, formerly the Beatson Institute, in Glasgow, UK. Read more
This Sunday (21st of April), 17 dedicated individuals will be donning their running shoes to conquer the renowned 26.2 mile London Marathon route, representing #TeamDEBRA. Read more
An update from our board of trustees, including key activities undertaken in the first quarter of 2024, and the progress we are making to BE the difference for EB. Read more
On Saturday 13th April, 16 determined walkers from the Jammers Fans Association (JFA) took part in a 10-mile charity walk to raise funds for DEBRA UK in memory of one of their members, Darren Gibbons. Read more
We are delighted to open a bright and modern charity shop in the heart of Lightwater village. Read more
We are delighted to announce our first four EB voices ambassadors. Read more
Over a dozen DEBRA UK members joined four researchers in our first online Application Clinic. Read more
A huge thank you to everyone who joined us at the ‘The Great Divide’ DEBRA UK sports dinner in Glasgow on Thursday 21st March 2024. Read more
On Tuesday 19th March, our Royal Patron, HRH The Duchess of Edinburgh GCVO hosted a meeting bringing together representatives from DEBRA UK and NHS England. Read more
We are delighted to announce that three leading health professionals have agreed to join DEBRA UK as official ambassadors for the charity. Read more
We're delighted to have achieved a MERIT in the British Council Safety Awards! Read more
DEBRA UK is delighted to have been chosen as a new charity partner for Manchester-based global employment law and HR consultancy, Peninsula Group. Read more
On Rare Disease Day, DEBRA Vice-President, Graeme Souness, and DEBRA member, Lucy Beall, who lives with recessive dystrophic EB, were interviewed on various radio stations to drive awareness of EB. Read more
Take a look at what the DEBRA UK team got up to to mark Rare Disease Day 2024 (29th February). Read more
We are delighted to announce that our dinner with rugby legend Jason Robinson OBE raised an impressive over £35,000 for our BE the difference for EB appeal. Read more
Two fantastic fundraisers have taken place in February to help those living with EB and to kick start our 2024 appeal, ‘BE the difference for EB’. Read more
We're thrilled to unveil our highly anticipated 2024 events calendar, encouraging supporters to actively get involved and make a meaningful impact on the lives of those affected by EB. Read more