Our Board of Trustees includes people from a variety of backgrounds and skills. To ensure best business practice, we have four board-level committees. Read more
All of our policies can be found here on our website, which covers the different areas of our work. Read more
Our Board of Trustees is made up from a majority of those who have a direct experience of EB, who either have EB themselves or have a close family member with EB, and those who have skills and experience that will add value to the governance and leadership of DEBRA. Read more
Find out what we've achieved over the past year and how we've put your money to good use supporting people living with EB. Read more
Our senior leadership team works towards our mission of improving the quality of life for people living with EB and our search for a cure. Read more