From left to right: Lucy Beall Lott, Vie Portland, Fazeel Irfan and Isla Grist. 

We are delighted to announce our first four EB voices ambassadors, DEBRA members Lucy Beall Lott, Vie Portland, Fazeel Irfan, and Isla Grist.

Our EB voices ambassadors are people directly impacted by EB who are willing to talk publicly and in the media about EB and the impact it has on their daily lives and on those closest to them.

We are hugely grateful to count on their support as sharing lived experiences of EB through the media helps to raise much-needed awareness of EB and the need for support.

 

Find out more about our EB voices ambassadors

 

Interested in getting involved?

Find out more about how you can share your story or get involved with the charity in other ways.