DebRA is the national charity working on behalf of people in the UK with the genetic skin blistering condition Epidermolysis Bullosa (EB). This site is your first port of call for reliable information on EB whether you or your child has EB, you want to support the charity, or you simply want to find out more.

For a full account of recent news and fundraising events, please visit our new Latest News channel.

Congratulations and thank you to all those who completed this year's Flora London Marathon and helped raise an estimated staggering total of £65,000 for DebRA! Click here to read more and view photo gallery.

STOP PRESS: You can now register for the 2009 Flora London Marathon online. Please note, the organisers will not be taking postal entries this year. Click here for more details.

If you would like to take part in the Mazda London Triathlon 2008 and raise money for DebRA please visit our Latest News channel.

Brand new for 2008, DebRA has launched the Three Peaks Challenge which will see corporate teams climb the highest mountains in Scotland, England and Wales respectively within a 24 hour target time! Go to our Latest News channel for further details.