Welcome to DEBRA

DEBRA is the national charity working on behalf of people in the UK with the genetic skin blistering condition Epidermolysis Bullosa (EB).

This site is your first port of call for reliable information on EB whether you or your child has EB, you want to support the charity, or you simply want to find out more.

What is EB?

Epidermolysis Bullosa (EB) is a very rare genetic condition in which the skin and internal body linings blister at the slightest knock or rub.

Latest News

DEBRA joins national campaign to generate charity shop donations:

HRH The Countess of Wessex visits DEBRA’s head office in Crowthorne:

DEBRA to benefit from Goldman Sachs Gives Gift:

DEBRA secures NHS funding for the National EB Nursing service:

First EB Patient Registry: EBCare.org:

Win up to £25,000 with DEBRA’s weekly lottery: