About EB

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Latest

DEBRA UK holds panel discussion at the LifeArc Translational Science Summit

DEBRA UK member and ambassador, Lucy Beall Lott, Vice President, Graeme Souness, CEO, Tony Byrne, and Director of Research, Dr Sagair Hussain, held a panel discussion at the LifeArc Translational Science Summit at the Business Design Centre in London.
01. Parent and Sibling Experiences of EB - interviews
Things to do before the event

Find out about the important things there are to do before you come to Members' Weekend.
DEBRA UK partners with the Cancer Research UK Scotland Institute to tackle early onset cancer in patients with RDEB

DEBRA UK is pleased to announce a new long-term research partnership with the world-renowned Cancer Research UK (CRUK) Scotland Institute, formerly the Beatson Institute, in Glasgow, UK.

Knowledge hub

DEBRA produces a range of high-quality booklets designed to give anybody living with EB, including individuals, families and carers, reliable information.
Meet others with EB

We recognise the significant value of peer support to share experiences with friends and other families. DEBRA events offer you the opportunity to get together and enjoy social activities.
DEBRA Holiday Homes

Located in some of the most popular and beautiful 5-star rated parks in the UK, members can be as active or relaxed as needed in our adapted holiday homes with a wide range of activities.
Support for you

As a membership organisation, we aim to provide the best support and care for people living with EB. We have a team experienced in the many challenges EB can bring and can help members in many ways.
Treatments & healthcare

There is currently no cure for EB, but at DEBRA UK we're working hard to change this. Treatments are designed to help ease and control symptoms such as pain and itch to improve quality of life.