EB can have a huge impact on not just the individual’s life, but their family too. Meet our heroes who have bravely shared their story about what it’s like to live with EB. Read more
If you or a family member live with EB, are a carer or someone who works with people affected by EB, then you can become a DEBRA member. Find out how. Read more
Find the latest member events that you could join to connect with others living with EB. Read more
We are pleased to be able to share with you EB Connect, a private online social collaboration platform for the global EB community. Read more
A list of books written by members of the EB community. Read more