You are here: About EB > What is EB? > #EBtome


Thank you to everyone who has joined us in raising awareness of EB for EB Awareness Week 2020. Together we have reached over 1 million people across social media and are starting to build a wider understanding of EB.

It has been great to hear your #EBtome stories and experiences as it really helps people to understand how EB affects people differently.

"EB to me is learning to walk every day; I just wish people could understand it more” – Terry

You can read more #EBtome stories below. Find out more about what EB is here.