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Peer Support

Peer Support

Peer support is designed for people to use their own experiences to help and support each other.  These groups allow you to share and discuss anything you need with others with EB who are going through similar situations.  

The list below contains some online support groups created by the EB Community. DEBRA is not part of nor facilitates these groups. You might find that some people have found certain products or services useful. Their experience may differ from yours. DEBRA does not specifically endorse any product or services.

Rare Connect EB Support Group 

Rare Connect allows people to connect from all over the globe to support each other. This forum has testimonies, advice and resources for those affected by EB. 

Epidermolysis Bullosa Lounge Closed Facebook Group 

The Private Lounge is intended for those who have EB themselves &/or their one or two main caregivers This is a private group to discuss more personal matters in a safe space.

Epidermolysis Bullosa Community Closed Facebook Group

This group is designed to bring people with EB together to make friends or just have an understanding support network.