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EB Corner

EB Corner

Welcome to the EB Corner! 

Here you will find useful news, articles and resources that may help you or be of interest. If there are any topics you would like to see covered, get in touch!

Healthcare

  • The transition from Child to Adult Services

Find out all about the transitioning process and what to expect.

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  • How has EB care improved in the last 40 years?

Thanks to the special partnership between DEBRA and the NHS, everyone with EB can now expect to receive care and support from a specialist multidisciplinary team including nurses, dietitians, podiatrists, and physiotherapists. 

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  • Taking steps in podiatry care

We recognise the importance of specialised EB podiatry service and the positive impact on the quality of life. To date, DEBRA UK has worked with all EB centres to support access to specialised podiatry services along with funding the development of the international clinical practice guidelines in podiatry.

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Community Support

  • How can the EB Community Support Team help you

Our Community Support Team are always happy to be a listening ear and can provide information and support to deal with a wide range of issues.

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  • How we can help with Universal Credit

Universal Credit is the biggest welfare reform we’ve seen. Learn more about it, and how we can help.

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  • Make your own happy jar!

Get creative and make your own happy jar! Fill it with things that make you happy and that will lift your mood when you are having a bad day.

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  • Get out of Debt

This time of year can be hard for everyone and debts can slowly mount up without you noticing or without much control. However, it is important to know that there is help out there and that you are not alone. Read our guide to see how you can get out of debt.

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  • My first tattoo with EB Simplex by Heather Bailey 

Some of you reading this will already have tattoos or you may want to get one. Click the link below to see a checklist Heather created to show what she did and went through to get her first tattoo.

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Membership

  • How Holiday's can help your mental health - Daisy's Story

A holiday allows you to step away from your daily routine. This way your brain gets a break from everyday stress and worries as it focuses on taking in all these new experiences.

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  • 8 Reasons to have your holiday in the autumn

DEBRA has five holiday homes for DEBRA Members to use – they are available at an even lower price during off-peak seasons.

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  • Technology & Independence Fund

The purpose of this pilot Technology and Independence Grant Scheme is to enhance daily living and promote independence for Members through technology and will run until 31st December 2019. For more information click here.

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  • DEBRA Travel and Independence Fund

The purpose of the Travel and Independence Grant Scheme is to enable people with EB to live a more independent and adventurous life and to help transform dreams into reality.

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  • DEBRA Education and Learning Fund

In 2018 we launched a new support grant scheme to enhance daily living and promote independence for our Members. Learn a new skill with our Education and Learning Fund!

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