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Become a DEBRA EB Media Ambassador

Become a DEBRA EB Media Ambassador

Everyone has a unique story, why not tell yours?

DEBRA wants to raise awareness of EB through engaging with the media in a variety of ways, from news articles to video segments and radio interviews.

All DEBRA members are encouraged to register their interest in volunteering as a DEBRA EB Media Ambassador. These roles have been created to empower the EB community through telling their stories and helping others better understand the condition.

Use your experience with EB to help others. EB is more than one person - it affects whole families, networks, local community groups, sports clubs, schools and more.

Telling your story

DEBRA is often approached by media outlets, locally and nationally. If your story is suitable, we will be in touch to discuss moving forward with the request. We'll support you throughout the interview process to ensure your questions are answered and you feel confident and prepared.

Telling your story is a personal decision and we respect and support whatever decisions you make. Stories can be shared with the media for a variety of reasons:

  • Raising awareness - helping others better understand the condition and how it can impact someone's daily life
  • Support and motivation - showing others that someone else is going through the same, or similar, struggles and offering advice and tips
  • Fundraising - letting our donors know how much of a difference their donations make to help care for and support DEBRA members and the wider EB community

Register your interest

If you're interested in becoming a DEBRA EB Media Ambassador, register your interest by completing the volunteer form below. Someone from the Communications Team will be in touch to provide additional information and discuss requirements for participating. 

For all enquiries relating to this volunteer role, please email Steph, our Marketing and Communications Manager.

 

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I confirm that I am a member of the EB community: *

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I am happy to be contacted about media opportunities in: *

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DEBRA fully complies with the Data Protection Act 1998. We respect your privacy and will not pass your details on to any third party. Read our privacy policy for more information.