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DEBRA UK advocate for EB at Scottish Parliament Reception

13th November 2025 (Last updated 13th November 2025)
Seven people, dressed in business and smart casual attire, stand side by side indoors in front of a wall with wooden and black panel designs at the Scottish Parliament, with a digital clock showing 17:36.

On 12 November, DEBRA UK held a reception at the Scottish Parliament in Edinburgh. The objective of the event, which was kindly sponsored by Bob Dorris MSP for Glasgow, Maryhill and Springburn, was to share the results of the EB Priority Setting Partnership, an important new global study which has identified the research priorities for each of the four main types of EB.

During the evening there were speeches from DEBRA member and ambassador, Lucy Beal Lott, and Vice President, Graeme Souness CBE, who both spoke about the challenges of accessing specialist EB healthcare in Scotland. There were also speeches from leading dermatologist, Professor Richard Weller, and Dr Oliva Hughes, who spoke about a forthcoming new resource that will launch early next year to support EB families with mental wellbeing.

We were delighted that the Scottish Minister for Public Health and Women’s Health, Jenni Minto, joined us and reconfirmed her commitment to work with us to help improve access to specialist healthcare support for the EB community in Scotland. It was also very encouraging to see other Ministers in the room.

We would like to express our sincere thanks to our sponsor, to our speakers on the evening, and to our members and guests from across Scotland who joined us.

 

                                     Three people wearing name badges pose indoors against a plain background. The two men wear blazers; the woman in the center wears a patterned dress and black boots, possibly attending an event related to the Scottish Parliament.            Two people stand side by side, both smiling at the camera at the Scottish Parliament. The man wears a navy suit with a lanyard; the woman wears a blue and white patterned blouse and uses crutches.            Three people wearing conference name badges and lanyards stand together indoors at the Scottish Parliament, smiling at the camera.

If you would like to help us raise awareness of EB with your local politician, please visit Marketing and communications roles for members | DEBRA UK for more information.

Logo of DEBRA UK. The logo features blue butterfly icons and the organization's name. Underneath, the tagline reads "The Butterfly Skin Charity.
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