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The Story of EB Research

Over the last 40 years, DEBRA UK has been funding research into the causes and possible treatments for EB. Check out the graphic below or download a copy of InTouch to see how far research has progressed.


Through our research we aim to:

  • Improve understanding of the biology and genetics of all forms of EB, as better understanding can lead to new approaches to diagnosis and treatment of EB
  • Work towards the development of therapies (including possible gene-therapies, cell-therapies, drug therapies or protein therapies)
  • Enhance understanding of the nature of wound healing and the development of skin cancer in EB, leading to the development of better treatments and prevention strategies
  • Support clinical-care research to improve the management of EB through symptom relief

Want to know more about what we're working on? Take a look at our current UK funded projects.