Member Pitstops

Our Member Pitstops (formerly called Parent Pitstops) are now open to all! These free online events provide an opportunity for all members – both parents and carers as well as those living with EB – to connect via Zoom and share experiences and ideas about topics relevant to children and adults living with all types of epidermolysis bullosa (EB).


“A great forum to exchange experiences and discuss practical problems with regards to our children with EB. Being completely new to this new life with a child with EB, it was great to know you’re not alone and there is a community to support you. It was also the place I made close friendships, with people who truly understand what you are going through.”
– DEBRA UK member.


These events are a great opportunity to connect with other members, share tips, and exchange advice for others living with EB. Sometimes we’ll have guest speakers to talk about topics of interest for the EB community as well.

Each session runs from 11am for one hour. We look forward to you joining us.

If you have any suggestions for topics you’d like to be covered at future events, please email your ideas to us at communitysupport@debra.org.uk.

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