Fight EB: Oliver's story

#FightEB so Oliver isn't stared at anymore

Watching football is the one big distraction that helps Oliver get through each day. He attends matches for his local football team, he's a dedicated Manchester United supporter and he's travelled to Spain to watch Barcelona F.C. play.

Every time Oliver goes out in public people stare at him.

Strangers ask if he's been burned and children ask their parents, 'What's wrong with that boy?'

'It would be so wonderful if people knew about Oliver's skin condition,' says his mum, Sarah. 'He just wants people to recognise what he's dealing with.'

Oliver suffers from Epidermolysis Bullosa (EB) - a potentially fatal skin condition that causes constant pain due to unstoppable internal and external blistering.

The constant blistering has taken its toll.

Continual scarring has bent his back, fused his fingers together and caused his limbs to contract. He is losing his eyesight and damage in his throat means he is always at risk of choking.

Oliver is becoming increasingly isolated.

'EB is so cruel. We've watched him decline - when he was a child he could still walk, but he can't any more. It's so tough watching EB make every day harder for him', says Sarah.

Support from DEBRA has made a massive difference to his quality of life.

DEBRA has made it possible for EB nurses to visit Oliver at home and make sure he gets the care he needs with as much comfort as possible.

And he's been able to meet up with other people suffering from EB and enjoy a weekend away from home.

Oliver and his family joined the #FightEB movement to raise EB awareness and as much money as possible to help other EB suffers.

'We want to make sure no one else has to go through what Oliver's going through. The more people who know what EB is, the more people will understand what he's living with and the more people will want to help.'

Support Oliver and his family and give now to #FightEB.

Your gift could fund vital research into effective treatments and, ultimately, a cure for EB; and provide care and support to improve the quality of life for the entire EB Community, now and in the future.


Sadly, Oliver passed away in December 2021