We are delighted to announce that Lenore England has accepted our invitation to become a Vice President of DEBRA, joining our President, Simon Weston CBE, and fellow Vice Presidents, Graeme Souness, Frank Warren, and Stuart Procter.

Announcing her appointment, Jim Irvine, DEBRA Chair of Trustees said:

We are delighted that Lenore has agreed to join the team at DEBRA as a Vice President. Lenore’s philanthropic work both in the UK and US is admirable, and we are very grateful to have her as part of the team to share her experience and ideas, and to support us in raising awareness and finding effective treatments and cure(s) for EB.

Lenore said:

I am greatly honoured and delighted to accept the post of Vice President — DEBRA. I especially look forward to serving alongside the current stellar DEBRA President and Vice Presidents to help raise funds to support research and ongoing work that will benefit the EB community.

About Lenore

Lenore was born and raised in Washington, DC in the USA. Her parents were actively involved in and thrived with their philanthropic work for numerous charitable organisations. Their work, as well as the work of previous generations of other family members, formed the framework for Lenore’s philanthropic work today.

After a 25-year career as a librarian and library associate, from 2017 Lenore has been applying “distilled” innovation to her philanthropy. She supports eight non-profit organisations in the Washington, DC area and London with ideas, initiatives, projects, from fundraising to newly established programs to innovation hubs, both on an individual and collaborative basis. Lenore is the Treasurer of the Patricia G. and Jonathan S. England Foundation and President of the Lenore A. England Foundation, Inc. She is a member of the Le Cure/Royal Marsden Cancer Charity Scientific Research Committee and the James Madison Council at the Library of Congress. Lenore was the founder of the American Library Association Philanthropic Advisory Group and was awarded the American Library Association/Association of Library Collections & Technical Services Presidential Citation for an “extraordinary vision to build a culture of philanthropy”.