Bob Dorris at scottish parliament reception

Last Wednesday (4th October), Bob Dorris, MSP for Glasgow Maryhill and Springburn, kindly asked the Scottish Government what work is ongoing to support the development of new treatments for people living with epidermolysis bullosa (EB).

In response, Jenni Minto, the Scottish Minister for Public Health and Women’s Health, provided a detailed update which you can view here.

We would once again like to thank Bob Dorris for his support, both with sponsoring our recent Scottish Parliament reception, and now with tabling this question to the Scottish Government.

In response to Jenni Minto’s update, we, alongside our advisor, Professor Christopher Griffiths OBE, are now in dialogue with Jenni and her team plus members of the Scottish Government’s Rare Disease Policy Team to discuss some of the challenges we are facing re. drug repurposing and to clarify the areas in which we need their support.