You are here: News > President of DEBRA International and DEBRA UK’s Chair of Trustees, Mike Jaega, has sadly passed away

President of DEBRA International and DEBRA UK’s Chair of Trustees, Mike Jaega, has sadly passed away

President of DEBRA International and DEBRA UK’s Chair of Trustees, Mike Jaega, has sadly passed away

It is with great sadness that we announce that Mike Jaega, President of DEBRA International and DEBRA UK’s Chair of Trustees, passed away yesterday, Wednesday, 6 February.

Mike became a Trustee for DEBRA in 2013, became Vice Chair of the Board in 2015 and became DEBRA UK’s Chair of Trustees in May 2018. He was the first person living with EB to become President of DEBRA International, and a true pioneer for the community.

During his time in DEBRA’s leadership, Mike was a driving force for change and a tireless and determined advocate for the EB Community. As Chairman, he created a real transformation in DEBRA’s work – he helped shape DEBRA’s priorities whilst never losing sight of the charity’s vision and direction. He inspired many people with and without EB to take a more active part in DEBRA’s work.

He once said, “EB is always there to keep me focused on making decisions that will bring the most benefit to people living with EB worldwide: you never lose sight of why you’re doing the job.”

Mike’s association with DEBRA started at a young age, and he became deeply involved with the charity over the course of his life.  His mother, Avril, was one of the founding members of the charity and some of his earliest memories were of playing on the floor of his living room whilst DEBRA meetings took place in his mother’s home.

Mike was a wonderful person with a clear focus, grit and determination to live life to the full, whilst maintaining his trademark dry sense of humour. He was a true inspiration and a real hero in the fight against EB. His passing happened far too early and our thoughts are with his wife and family. He will be sorely missed and never forgotten.

There will be more information in the weeks and months to come. Mike had many friends across the EB Community and we know the very sad news of his death will be upsetting.  If you need support you may find it helpful to talk to your family and friends, or contact your Community Support Manager, nurse or GP, who may be able to assist or put you in touch with someone that can help.

 Ben Merrett – DEBRA CEO

If you would like to leave a message on Mike's remembrance page please click here. Please note it will take a few days for the message to be public. If you would like to submit a picture with eulogy to please email it to debranews@debra.org.uk

 

 

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