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Adults with EB enjoy a magical weekend away with DEBRA

Adults with EB enjoy a magical weekend away with DEBRA

For adults who may need additional support to stay away from home, the DEBRA weekend away  provides an opportunity to be independent, meet and share experiences with other people living with EB and achieve new things.

Teenagers with EB also enjoyed a day meet up over the weekend.

“Thank you so much for a successful and magical weekend away. You are truly our DEBRA wizards!” – DEBRA Member, Bethany

The weekend away is supported by specialist EB nurses who are able to assist with medical needs and DEBRA’s EB Community Support Team are on hand to provide practical and emotional support throughout the weekend. We receive no government funding for our work and without donations from our supporters this would not be possible.

 “I am still revelling in the fantastic time we all had over the weekend! I really felt I bonded with people and feel a bit closer to Annette, my EB nurse, now so that is wonderful.” – DEBRA Member, Kerri

Demand for social opportunities like this is high – our weekend stay away with DEBRA Ireland already has a waiting list.

However, we're delighted to confirm that we have three more Regional Get-Togethers for the EB Community set to take place this year.

Watch this space for more details!

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