Help us to raise awareness of EB and the need for additional funding to support drug repurposing. Read more
An update from our board of trustees, including key activities undertaken in the first quarter of 2024, and the progress we are making to BE the difference for EB. Read more
We are delighted to open a bright and modern charity shop in the heart of Lightwater village. Read more
We are delighted to announce our first four EB voices ambassadors. Read more
Over a dozen DEBRA UK members joined four researchers in our first online Application Clinic. Read more
A huge thank you to everyone who joined us at the ‘The Great Divide’ DEBRA UK sports dinner in Glasgow on Thursday 21st March 2024. Read more
On Tuesday 19th March, our Royal Patron, HRH The Duchess of Edinburgh GCVO hosted a meeting bringing together representatives from DEBRA UK and NHS England. Read more
We are delighted to announce that three leading health professionals have agreed to join DEBRA UK as official ambassadors for the charity. Read more
We're delighted to have achieved a MERIT in the British Council Safety Awards! Read more
DEBRA UK is delighted to have been chosen as a new charity partner for Manchester-based global employment law and HR consultancy, Peninsula Group. Read more
On Rare Disease Day, DEBRA Vice-President, Graeme Souness, and DEBRA member, Lucy Beall, who lives with recessive dystrophic EB, were interviewed on various radio stations to drive awareness of EB. Read more
Take a look at what the DEBRA UK team got up to to mark Rare Disease Day 2024 (29th February). Read more
We are delighted to announce that our dinner with rugby legend Jason Robinson OBE raised an impressive over £35,000 for our BE the difference for EB appeal. Read more
Two fantastic fundraisers have taken place in February to help those living with EB and to kick start our 2024 appeal, ‘BE the difference for EB’. Read more
We're thrilled to unveil our highly anticipated 2024 events calendar, encouraging supporters to actively get involved and make a meaningful impact on the lives of those affected by EB. Read more
Today (February 5) we launch our major new fundraising appeal for 2024, BE the difference for EB. Read more
This World Cancer Day, we’re highlighting the research projects we fund to understand more about the progression of cancer in EB, and to investigate opportunities for future drug development to treat skin cancer. Read more
Discover the impact of supporters' generosity in our twice-yearly supporter newsletter. Read more
We are delighted to announce that Emma Dodds has agreed to become an ambassador for DEBRA UK. Read more
Michel has been a supporter of the charity for many years, which has included him hosting our annual Great Chefs Dinner. Read more
The meeting was an opportunity to share with Lord O’Shaugnessy the progress we have made to date with our drug repurposing programme and some of the challenges we are facing. Read more
A summary of our current research, new research funding awarded in 2023 and research funding opportunities for 2024. Read more
An update from our board of trustees, including key activities undertaken in the fourth quarter of 2023, and the progress we are making to #StopThePain of EB. Read more
As another indicator of the progress made this year in relation to raising awareness of EB and of DEBRA, we were really encouraged to be invited to a recent All Party Parliamentary Group on rare genetic and undiagnosed conditions. Read more
Throughout November, we held our first virtual knitting challenge, and non-physical virtual challenge of its kind. The DEBRA November knitting challenge asked participants to knit every day, to help raise funds to #StopThePain of EB. Read more