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Family Takes on Triple Challenge to Fight EB

Family Takes on Triple Challenge to Fight EB

Miles Crossley, whose son Mason (5) has EB, is taking on three unique cycling challenges to fight EB and support DEBRA.

ITV News covered the amazing story.

 

Mason's type of EB means that he faces a dramatically increased risk of developing an aggressive and ultimately fatal form of skin cancer. DEBRA is funding research into effective treatments for this life-threatening symptom.

Supported by his family, Mason's dad Miles began his epic mission with the The Fred Whitton cycling challenge (on 13 May), covering 112 miles with 12,000 ft of climb. 

Next on the list is 'Everesting', a challenge Miles devised himself, cycling the height of Everest – 23,000 foot – in one day. Basecamp will be at his local pub and his family will be on hand to provide moral and physical support.

And finally, Miles will be taking on the London to Paris cycle ride with DEBRA, a three day endurance effort totalling 325 miles.

From  the moment Mason's EB was diagnosed, he and his family received specialist care from the EB Nursing Team at Birmingham Children's Hospital, which is supported by DEBRA, and DEBRA's EB Community Support Team, which provides crucial information and support to tackle a wide range of issues around EB, including benefits, finance, housing, education and employment.

Miles says: "I'm doing this to raise money to help DEBRA find a cure and end this horrific condition and ultimately create life changing results for those affected. DEBRA also support us, and I'm doing these challenges to help DEBRA support other people suffering from EB and their families." 

Thank you Miles, you #FightEB!

Get in touch with the Fundraising Team to fight EB today and get help and support to share your story.

Image: Mason Crossley.

 

 

 

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