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Share your experience at a Patient-Focussed Drug Development Meeting for EB

Share your experience at a Patient-Focussed Drug Development Meeting for EB

DEBRA of America is excited to announce they'll be meeting directly with the US Food and Drug Administration (FDA) this Friday, 6 April at 6pm UK time (7pm CEST).

This incredibly important meeting gives those with EB and those caring for people with EB the opportunity to educate the FDA about daily life with EB including symptoms, issues faced, and the importance of therapy development.

This meeting will help guide the FDA in determining the regulatory pathway of all EB research and therapy development, and the international EB Community can be a part of that.

Watch the meeting live: https://www.youtube.com/user/DebraofUS/live

How to register to participate in live polling: http://bit.ly/2Ejyeqy

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Could pay for one hour of research to bring us closer to finding effective treatments for EB.

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