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Royal Patron puts the focus on EB in Hello! Magazine

Royal Patron puts the focus on EB in Hello! Magazine

Aspiring photographer James Dunn, who has EB, was invited to Buckingham Palace to meet our Royal Patron, Her Royal Highness, The Countess of Wessex GCVO, and take her portrait. 

Get the full story in this week’s Hello! Magazine.

James hopes that his work as a photographer will raise awareness of the condition and make a real difference to others suffering from EB.

Members of the EB Community, including James, came together to tell their stories as part of our recent #FightEB appeal, helping to raise over £280,000.

Money raised could help provide care and support for people with EB now or fund potentially life-changing research, including a three-year clinical trial currently in progress to investigate whether a drug, Rigosertib, could combat the cancer caused by some types of EB.

If successful, this trial could be a step towards transforming the quality of life for thousands of EB suffers like James.

It’s not too late – please give now to continue to #FightEB and make a real difference to people suffering from EB.

Thank you.

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