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Great Chefs team up to support people suffering from Epidermolysis Bullosa

Great Chefs team up to support people suffering from Epidermolysis Bullosa

On Tuesday, 6 February 2018 six stellar chefs will be giving up their time for free to create a unique dining experience for 106 lucky guests – and to raise money which could make a real difference to the quality of life for people suffering from Epidermolysis Bullosa (EB).

The Great Chefs Dinner is taking place at Roux at The Landau, the signature restaurant at one of the most luxurious hotels in the capital, The Langham, London. Chefs Chris King, Chris Galvin, Jacob Kenedy, Michel Roux Jr, Hywel Jones and Andrew Gravett will each be responsible for one course of the bespoke menu, from canapés to petit-fours. Guests will be able to enjoy specially paired wines (kindly supplied free of charge by England's leading wine producer, Chapel Down) with each delectable course.

Money raised through the unique event will be donated to the #FightEB appeal, which could help fund EB research and provide care and support for people suffering from the condition.

The Great Chefs Dinner, now in its third year, is generously hosted by Michel Roux Jr, a long-term supporter of DEBRA.

Michel Roux Jr, Chef Patron of Le Gavroche, and the man behind Roux at the Landau and Roux at Parliament Square, says: “When I first heard about EB and the incredible work that DEBRA does, I felt compelled to help. I am honoured to be hosting the Great Chefs Dinner once again this year and continue my long-standing support for the #FightEB appeal. The research and aid funded by DEBRA is so important to help sufferers and their families have a better quality of life, and I am proud to be involved with this worthwhile event.”

Last year’s Great Chefs Dinner – which raised an impressive £80,000 – contributed significantly to the construction of the new Rare Diseases Centre at St Thomas’ Hospital, London, which is already making a real difference to the quality of life for people suffering from EB.

The new centre enables the hospital’s specialist EB clinical team to provide the best possible care in a comfortable and welcoming environment specially designed with the needs of the EB Community in mind.

EB sufferer James Dunn, who has an aggressive form of cancer caused by his EB, is taking part in the current #FightEB appeal and will be speaking on the night. He explains what a difference the new centre is making: “The centre is very bright, modern and spacious. I love the communal area – it’s more open and sociable now. It’s brilliant that, for the first time, we have our own space and everything we need is done here without moving around – it makes life much easier.”

Money raised through this Great Chefs Dinner and the #FightEB appeal could help fund more projects like this in future as well as research into symptom alleviation and effective treatments for the condition, including clinical trials to investigate whether a drug, Rigosertib, could be used to reduce or destroy EB cancer tumours which have not responded to conventional treatments.

To learn more about EB, hear inspiring stories from across the EB Community and donate, please visit www.FightEB.org.uk.

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