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Tell us what you thought of our latest EB Get Together in Birmingham!

Tell us what you thought of our latest EB Get Together in Birmingham!

Thank you so much to all those who attended our EB Members’ Get Together on Saturday at the National Motorcycle Museum.  It was great to see so many people chatting, sharing ideas, experiences, and making new friends.

The feedback overall for the day was very positive.  If you attended but you did not get an opportunity to complete a feedback form, it would be great if you could help us by doing this online.

We always welcome ideas for future member meetings such as the location, format, presentations and workshops, so please do email Hazel Ewens, our Membership Manager ( with your ideas.  We always like to hear what works well and what doesn’t!

On behalf of DEBRA and all our members,  we would like to say a massive thank you to the sponsors who funded the day, namely Castle Creek Pharmaceuticals who are currently running a clinical trial which could improve the quality of life for people with EB Simplex and our healthcare company sponsors BullenClinimedClinidirect and Aspen Medical.  It would be difficult for DEBRA to host an event such as this without the help and kindness of our sponsors.

It would be so much appreciated by so many if our Members could help DEBRA raise awareness of our campaign #FIGHTEB and help James achieve his legacy of raising £100,000 before Christmas, this would make a huge difference to the EB community.  You can also help in sharing information about becoming a DEBRA Member to other people living with EB who are not currently members and therefore missing out on receiving the benefits our membership offers.

As a reminder, If you have any feedback, comments or ideas at all please do share them with us at , we value your thoughts and opinions and would love to hear from you.

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