You are here: News > DEBRA Members' Weekend makes a big difference

DEBRA Members' Weekend makes a big difference

DEBRA Members' Weekend makes a big difference

From 13 - 14 May 2017, DEBRA held its Members’ Weekend and Annual General Meeting at Drayton Manor Park, Tamworth.

This annual event offers people living with EB, their families and siblings an opportunity to meet others living with the condition, share experiences and make new friends in a relaxed setting. 

Missed out?

See photos from the weekend here.

We'll be adding more photos and  resources from the weekend to this page as they become available - please keep checking back for more information.

To show you what a difference this event makes to people living with EB, we can do no better than include some comments from people living with EB who came to the weekend.

Fun and games at Members' Weekend


'DEBRA helps my eight year old son understand he is not alone.'

Guests also enjoyed catching up on the latest developments in EB research, getting practical advice about EB care and learning more about the services offered by DEBRA's community support team.

Smiling girl with smiling lady

'You organised such a great event and we are really grateful for all you have done for us. Thank you very much!'

There was a lively Q and A session with DEBRA's Board of Trustees and new trustees were elected to the board during the AGM.

Young DEBRA member and staff sharing a laugh over colouring

Kids and adults alike enjoyed a fun family room where children and parents could mingle, share stories, make new friends and play games.

'DEBRA has helped us as family by bringing us in to contact with others who are dealing with the same issues.' 

In the evening there was a chance for families to relax and socialise further with a dinner and disco.

Members were able to have overnight accommodation, enabling them to attend  the event in comfort and make the most of the activities on offer during the weekend.

'DEBRA are just a FABULOUS charity organisation and are very supportive to us... we love DEBRA.'

Help us improve

If you attended the weekend, please complete this quick survey to help us improve future events.

If you have any other comments or suggestions you would like to share please call the DEBRA Membership Team on 01344 771961 or email We'll be delighted to hear from you.

Thank you to the generous supporters and event sponsors who made this event possible. 

Gold sponsors: 

DEBRA Members Weekend Sponsors

Silver sponsors: CliniSupplies, Clinimed, Urgo, Aspen Medical, H&R Healthcare.

Make a difference

Make a difference

Please help us fund vital healthcare such as specialist EB nurses as well as research, care and life-changing support. 

Donate Today