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DEBRA Members' Weekend makes a big difference

DEBRA Members' Weekend makes a big difference

From 13 - 14 May 2017, DEBRA held its Members’ Weekend and Annual General Meeting at Drayton Manor Park, Tamworth.

This annual event offers people living with EB, their families and siblings an opportunity to meet others living with the condition, share experiences and make new friends in a relaxed setting. 

To show you what a difference this event makes to people living with EB, we can do no better than include some comments from people living with EB who came to the weekend.

'DEBRA helps my eight year old son understand he is not alone.'

Guests also enjoyed catching up on the latest developments in EB research, getting practical advice about EB care and learning more about the services offered by DEBRA's community support team.

'You organised such a great event and we are really grateful for all you have done for us. Thank you very much!'

There was a lively Q and A session with DEBRA's Board of Trustees and new trustees were elected to the board during the AGM.

Kids and adults alike enjoyed a fun family room where children and parents could mingle, share stories, make new friends and play games.

'DEBRA has helped us as family by bringing us in to contact with others who are dealing with the same issues.' 

In the evening there was a chance for families to relax and socialise further with a dinner and disco.

Members were able to have overnight accommodation, enabling them to attend  the event in comfort and make the most of the activities on offer during the weekend.

'DEBRA are just a FABULOUS charity organisation and are very supportive to us... we love DEBRA.'

Help us improve

If you attended the weekend, please complete this quick survey to help us improve future events.

If you have any other comments or suggestions you would like to share please call the DEBRA Membership Team on 01344 771961 or email membership@debra.org.uk. We'll be delighted to hear from you.

Missed out?

We'll be adding photos and  resources from the weekend to this page as they become available - please keep checking back for more information.

Thank you to the generous supporters and event sponsors who made this event possible. 

Gold sponsors: 

DEBRA Members Weekend Sponsors

Silver sponsors: CliniSupplies, Clinimed, Urgo, Aspen Medical, H&R Healthcare.

Make a difference

Make a difference

£25.00 
A MONTH

Could pay for one hour of research to bring us closer to finding effective treatments for EB.

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