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DEBRA News: January 2020

World class female chefs unite for DEBRA UK

29 January 2020

International culinary stars including Michel Roux Jr support the fight against Epidermolysis Bullosa.

 

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Researcher Dr Maria Papanikolaou collaborates with DEBRA UK to visit the Miami Itch Center

29 January 2020

Dr Maria Papanikolaou shares her experience of visiting the Miami Itch Center with the support of DEBRA UK. Dr Papanikolaou is currently working on the PRUMEC trial, which focuses on explaining the cause of itch in an inherited skin condition known as Dystrophic Epidermolysis Bullosa. 

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DEBRA UK Partners with Cure EB and EBRP for EB 2020

22 January 2020

The EB World Congress in January 2020 will be the first global Congress on EB, bringing together the world’s leading experts in EB research, clinical management, and the EB Community.

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Guest blog: A few words on living with EB Simplex

14 January 2020

Guest writer Tom Ridley shares his experience on life with EB Simplex in the hope to raise awareness of the condition.

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The Brothers Trust host special screening for the EB Community

13 January 2020

The Brothers Trust invited DEBRA Members to a very special screening of the new Disney film, Spies in Disguise.

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