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DEBRA News: March 2019

Young EB sufferers highlight need for organ donors

5 March 2019

13 year old Grace Fincham, who has a rare form of EB which causes weakness to her heart, recently received a lifesaving heart transplant. But her brother Freddie, who has the same type of EB, needs one too

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DEBRA Member Myra Ali Shakes Her Beauty to #FightEB

1 March 2019

DEBRA Member Myra Ali, who has EB, recently filmed the mini documentary "Shake My Beauty" with Barcroft TV. Watch it here. 

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