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DEBRA News: September 2018

DEBRA’s Royal Patron, The Countess of Wessex officially opens the Rare Diseases Centre at St Thomas’s Hospital

27 September 2018

DEBRA contributed £250,000 to the construction of the new centre at St Thomas Hospital, which is specifically designed for people with genetic skin conditions, including EB.

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An exciting opportunity to attend a family activity camp in Ireland on 24th to 25th November!

25 September 2018

DEBRA Ireland have organised an activity camp in partnership with Barretstown an organisation that specialises in fun activity camps with medical back up. DEBRA Ireland have kindly invited DEBRA UK to join in with a limited amount of places to their overnight stay and activities!

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Sporting Challenge Helps Fund EB Nurses

24 September 2018

DEBRA’s thirteenth annual DEBRA Sporting Challenge raised over £25,000 for DEBRA, helping to fund vital care, support and research for the EB Community, including specialist EB nurses across the UK.

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Harry Potter Tour Teen Meet Up

21 September 2018

DEBRA has a limited number of day tickets for The  Harry Potter Studio Tour  in Watford near London  for Saturday the 6 October at 11.30.

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