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DEBRA News: January 2018

'Boys With No Skin' Documentary Raises EB Awareness

30 January 2018

Did you see the EB documentary, 'The Boys With No Skin', on Channel Five? Watch it here and learn more about  support available and the research discussed in the programme.

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What you need to know about the next skin graft trials

19 January 2018

We can confirm that researcher Michele De Luca and his team, who successfully reconstructed a fully functional outer skin – or epidermis – for a child suffering from Junctional EB have received funding to carry out further trials of the technique. 

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Great Chefs team up to support people suffering from Epidermolysis Bullosa

16 January 2018

On Tuesday, 6 February 2018 six stellar chefs will be giving up their time for free to create a unique dining experience for 106 lucky guests – and to raise money which could make a real difference to the quality of life for people suffering from Epidermolysis Bullosa (EB).

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Amryt Pharma EASE Phase III Clinical Trial to study the efficacy and safety of Oleogel-S10 in Epidermolysis Bullosa

11 January 2018

The EASE clinical study will be performed in several countries including the UK. Two key UK sites include Great Ormond Street Hospital in London and Birmingham Children’s Hospital NHS Trust. In total about 164 participants are expected to participate.

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What’s different about the Rare Diseases Centre at St. Thomas’ Hospital?

5 January 2018

The new centre, which DEBRA part-funded, enables the specialist EB clinical team there to provide the best possible care in an environment specially designed with the needs of the EB Community in mind.

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