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How Being A Charity Trustee Allows Me To #FightEB - Simone Bunting

14 November 2017

DEBRA’s boardroom gave me the opportunity to really use this powerful position to make decisions that would make a real difference to the lives of people suffering from EB.

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EB researchers break new ground with skin graft trial

9 November 2017

An international team of researchers has broken new ground with a pioneering skin grafting procedure, reconstructing a fully functional outer skin – or epidermis – for a child suffering from a severe, and often fatal, form of EB.

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Unique Rare Diseases Centre accepts first EB patient

6 November 2017

Earlier this month the new Rare Diseases Centre at St Thomas’ Hospital, London, accepted its first patient suffering from Epidermolysis Bullosa (EB)

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Help us #FightEB this EB Awareness Week (25 - 31 October 2017)

20 October 2017

Every year, International EB Awareness Week takes place from 25 – 31 October.  Get involved and help us spread EB awareness around the world. 

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Developing Treatments for Epidermolysis Bullosa Simplex

6 October 2017

Gene therapy may be a promising treatment in the future for Epidermolysis Bullosa Simplex (EBS), where stem cells could be cultured outside of the body, modified and returned as transplants.

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