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Great Chefs team up to support people suffering from Epidermolysis Bullosa

16 January 2018

On Tuesday, 6 February 2018 six stellar chefs will be giving up their time for free to create a unique dining experience for 106 lucky guests – and to raise money which could make a real difference to the quality of life for people suffering from Epidermolysis Bullosa (EB).

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Amryt Pharma EASE Phase III Clinical Trial to study the efficacy and safety of Oleogel-S10 in Epidermolysis Bullosa

11 January 2018

The EASE clinical study will be performed in several countries including the UK. Two key UK sites include Great Ormond Street Hospital in London and Birmingham Children’s Hospital NHS Trust. In total about 164 participants are expected to participate.

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What’s different about the Rare Diseases Centre at St. Thomas’ Hospital?

5 January 2018

The new centre, which DEBRA part-funded, enables the specialist EB clinical team there to provide the best possible care in an environment specially designed with the needs of the EB Community in mind.

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James and Jemma #FightEB on TV

3 January 2018

Watch DEBRA member James Dunn and Consultant Dermatologist Prof. Jemma Mellerio highlighting the difference the new Rare Diseases Centre at St Thomas’ Hospital, London, is making to people suffering from EB on BBC Breakfast.

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Watch two heroes #FightEB on ITV

8 December 2017

Earlier this week, DEBRA member James Dunn, and Spider-Man actor Tom Holland appeared on ITV’s Good Morning Britain. They talked about the importance of raising EB awareness, photography and a new clinical trial that could potentially treat the cancer caused by EB.

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