New Research Supports EB Cancer Trial
12 April 2019
New research suggests Rigosertib may be safe and effective in combating EB cancer. We’re funding a clinical trial to take it to the next stage.
Young EB sufferers highlight need for organ donors
5 March 2019
13 year old Grace Fincham, who has a rare form of EB which causes weakness to her heart, recently received a lifesaving heart transplant. But her brother Freddie, who has the same type of EB, needs one too
DEBRA Member Myra Ali Shakes Her Beauty to #FightEB
1 March 2019
DEBRA Member Myra Ali, who has EB, recently filmed the mini documentary "Shake My Beauty" with Barcroft TV. Watch it here.
#ShowYourRare and #FightEB for Rare Disease Day
13 February 2019
Raise awareness of EB and show your support for the EB Community throughout February by posting a selfie on Twitter, Instagram and Facebook with the hashtags #FightEB and #ShowYourRare.
President of DEBRA International and DEBRA UK’s Chair of Trustees, Mike Jaega, has sadly passed away
7 February 2019
It is with great sadness that we announce that Mike Jaega, President of DEBRA International and DEBRA UK’s Chair of Trustees, passed away yesterday, Wednesday, 6 February.
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