Taking Portraits with our Royal Patron to #FightEB
20 February 2018
Did you see DEBRA Member James Dunn on ITV’s Good Morning Britain this morning?
Generous Guests and Great Chefs #FightEB
9 February 2018
Earlier this week guests came together to support the #FightEB campaign at the DEBRA Great Chefs Dinner, a unique dining experience at one of the most luxurious hotels in the capital, The Langham, London, raising over £85,000!
'Boys With No Skin' Documentary Raises EB Awareness
30 January 2018
Did you see the EB documentary, 'The Boys With No Skin', on Channel Five? Watch it here and learn more about support available and the research discussed in the programme.
What you need to know about the next skin graft trials
19 January 2018
We can confirm that researcher Michele De Luca and his team, who successfully reconstructed a fully functional outer skin – or epidermis – for a child suffering from Junctional EB have received funding to carry out further trials of the technique.
Great Chefs team up to support people suffering from Epidermolysis Bullosa
16 January 2018
On Tuesday, 6 February 2018 six stellar chefs will be giving up their time for free to create a unique dining experience for 106 lucky guests – and to raise money which could make a real difference to the quality of life for people suffering from Epidermolysis Bullosa (EB).
Make a difference
£25.00
A MONTH
Could pay for one hour of research to bring us closer to finding effective treatments for EB.