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Stay cool in the heat: top tips

27 July 2018

Read our top tips for staying cool in the heat when you have EB.

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EB nurses recognised with Nightingale Award

9 July 2018

As the NHS celebrates its 70th year, we’d like to congratulate EB clinical nurse specialists Caroline Mackenzie and Annette Downe on being recognised with the Nightingale Award, which was recently launched at Guy’s and St Thomas’ NHS Foundation Trust.

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DEBRA Member Daisy Pearson shortlisted for Young Fundraiser of the Year Award!

28 June 2018

DEBRA Member Daisy Pearson (12) from Holt in North Norfolk has been shortlisted for the Young Fundraiser of the Year Award by the National Institute of Fundraising.

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Important discovery increases understanding of EB

28 June 2018

A research project funded by DEBRA has made an important discovery which could be a first step in developing effective treatments for a specific type of EB. 

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DEBRA Weekend Away for Adults - Hertfordshire 5-7th October 2018

27 June 2018

We are excited to be planning a weekend away this autumn for adults (18+) living with EB!

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