The Boy Whose Skin Fell Off
20 May 2020
The moving documentary following the final few months of of Jonny Kennedy's life as he fought and lost his battle with severe EB.
Home-schooling and EB
13 May 2020
Many families around the country are currently faced with the task of managing home-schooling, but what does this look like for an EB family? DEBRA Member and Trustee Carly has shared her experience of the ‘new normal’ and some tips for getting through the home-school day.
Mason White challenges the boxing community to help him raise funds for EB nurses
6 May 2020
Mason White, 11, isn't letting his EB get in the way of his determination to raise funds for the DEBRA funded EB nurses that make such a difference.
Boost your immunity during the Covid-19 pandemic
6 May 2020
Lynne Hubbard, Principal Dietitian for adolescents and adults with EB working in partnership with DEBRA discusses ways to boost your immunity during the Covid-19 pandemic
2.6 Challenge raises over £8,500 to support the EB Community
6 May 2020
A huge thank you to all of our fundraising heroes who took part in the 2.6 challenge, you have helped to raise £7,500 to support the EB Community.
Make a difference
Please help us fund vital healthcare such as specialist EB nurses as well as research, care and life-changing support.