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2018 DEBRA International Congress - One month on

8 October 2018

It was only a month ago when more than 250 delegates and global leading experts gathered together for one purpose – sharing knowledge and best practice in fighting against the painful, skin-blistering condition Epidermolysis Bullosa (EB).

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Boxing's Frank Warren hosts Fight Night to #FightEB

5 October 2018

DEBRA’s annual Fight Night, the biggest charity fundraising boxing event hosted by hall of fame boxing manager and promoter Frank Warren, returns to London for a night of action-packed live boxing on Friday, 26 October 2018.

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DEBRA’s Royal Patron, The Countess of Wessex officially opens the Rare Diseases Centre at St Thomas’s Hospital

27 September 2018

DEBRA contributed £250,000 to the construction of the new centre at St Thomas Hospital, which is specifically designed for people with genetic skin conditions, including EB.

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An exciting opportunity to attend a family activity camp in Ireland on 24th to 25th November!

25 September 2018

DEBRA Ireland have organised an activity camp in partnership with Barretstown an organisation that specialises in fun activity camps with medical back up. DEBRA Ireland have kindly invited DEBRA UK to join in with a limited amount of places to their overnight stay and activities!

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Sporting Challenge Helps Fund EB Nurses

24 September 2018

DEBRA’s thirteenth annual DEBRA Sporting Challenge raised over £25,000 for DEBRA, helping to fund vital care, support and research for the EB Community, including specialist EB nurses across the UK.

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