You are here: News

#ShowYourRare and #FightEB for Rare Disease Day

13 February 2019

Raise awareness of EB and show your support for the EB Community throughout February by posting a selfie on Twitter, Instagram and Facebook with the hashtags #FightEB and #ShowYourRare.

More details

President of DEBRA International and DEBRA UK’s Chair of Trustees, Mike Jaega, has sadly passed away

7 February 2019

It is with great sadness that we announce that Mike Jaega, President of DEBRA International and DEBRA UK’s Chair of Trustees, passed away yesterday, Wednesday, 6 February.

More details

Celebrating 2018's Fundraising Heroes: Community Support Manager Rowena Hamilton

31 December 2018

Community Support Manager Rowena Hamilton was inspired to trek the Sahara to fight EB – read her story

More details

Investing to #FightEB

19 December 2018

We’re delighted to be partnered with investment platform Greenfinch’s You Give We Give initiative to #FightEB.

More details

40th Anniversary Highlights!

18 December 2018

In November, DEBRA showcased it's achievements over the years for and with the EB Community at our 40th Anniversary Reception. Watch the video to see the highlights from the evening!

More details

Make a difference

Make a difference

Please help us fund vital healthcare such as specialist EB nurses as well as research, care and life-changing support. 

Donate Today