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DEBRA retail stores to re-open

4 June 2020

Following the relaxation of lockdown rules by the Government and the guidelines set out for retail stores, we are delighted to be planning to re-open some of our stores throughout June.

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The Boy Whose Skin Fell Off

20 May 2020

The moving documentary following the final few months of of Jonny Kennedy's life as he fought and lost his battle with severe EB.

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Home-schooling and EB

13 May 2020

Many families around the country are currently faced with the task of managing home-schooling, but what does this look like for an EB family? DEBRA Member and Trustee Carly has shared her experience of the ‘new normal’ and some tips for getting through the home-school day. 

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Mason White challenges the boxing community to help him raise funds for EB nurses

6 May 2020

Mason White, 11, isn't letting his EB get in the way of his determination to raise funds for the DEBRA funded EB nurses that make such a difference.

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Boost your immunity during the Covid-19 pandemic

6 May 2020

Lynne Hubbard, Principal Dietitian for adolescents and adults with EB working in partnership with DEBRA discusses ways to boost your immunity during the Covid-19 pandemic

 

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